Wednesday, May 26, 2010

Living on the Fly

I am not, by nature a very scheduled type of person. However, this is getting ridiculous! Monday evening, we moved back over to the step-down unit. We were there just over 24 hours, and now we are back in the PICU! Last night, about 6:30 or so, Jethro's heart started up it's hinky rhythms again. Not as bad rate wise, as it was Friday night, but not good.

Yesterday he was also apparently boycotting his cardiac meds, because he threw them up in the morning, and almost immediately after getting his evening dose of Amiodarone, he threw that up. So, Dr. Jensen decided that he needed to be in the PICU and receive at least a dose of meds via IV ~ which they don't do in the step-down.

So, I have absolutely no idea when we are going to get to head for home...not even sure where we'll be in the hospital come night shift time. :-P Jethro did have a good night, and he's been fine today, but they are going to shoot for some sort of stability before they discharge him. On the plus side, Dr. Jensen & Co., know that we are competent and capable, so that makes them a little more lenient in when we can go.

We are definitely learning to live moment by moment with this boy.


  1. Jethro marches to the beat of his own drummer, that's for sure. :-) Praying for the best!
    Mrs. G

  2. I don't recall how I came across your blog but it was shortly after Jethro's birth. I have been praying daily for that little guy. I will continue to do so. I'm also saying prayers for the entire family.

  3. The roller coaster ride continues... But, we'll continue to pray too!